PREVAIL STUDY

Do you have breathing problems?

Our practice is taking part in a research study called PREVAIL. The study will assess a quality improvement programme called CONQUEST. This is a new way to find, and improve care and treatment for patients with a lung condition known as COPD or may be at risk of having this condition, who experience flare-ups of their symptoms.  As part of this research, de-identified data about our patients will be shared with the PREVAIL research team. This is data that does not have any information that would identify our patients. No personal details will be shared with the research team. However, personal data (NHS number, date of birth and gender) will be shared with NHS England, so they can provide hospital data to the research team about hospital attendances, admissions, treatment and deaths. Sharing of personal data is supported under ‘section 251’ by the Health Research Authority Confidentiality Advisory Group. 
If you do not want your data to be shared for the PREVAIL study, you can opt out from sharing your data until 31st December 2025. This will not 
affect the care that you receive from us.  If you have any questions about this study or how your de-identified information is used, or you wish to withdraw from sharing your data for research purposes, please email us at abbottswood.wp@nhs.net
For more information please go to:
Website: www.opri.org.uk/prevail
Phone: 01223 967 855
Email: PREVAIL@opri.org.uk

Sponsered by Great Ormond Street Hospital the objectives for this trial are:

1. To determine whether the use of a check list for the 6-week hip check can (i) reduce the number of clinically insignificant referrals from primary to secondary care, and (ii) reduce the number of DDH diagnosed beyond the age of 12 weeks.
2. To determine the cost-effectiveness of this intervention considering a life time horizon.
3. To conduct an integrated qualitative and quantitative process evaluation in order to: understand the participants' experience with the intervention; identify how the intervention affects GPs’ capability, opportunity and motivation in relation to the 6-week check; study how the intervention is implemented; and investigate how contextual factors affect uptake of the intervention

When booking your childs 6 week check you will be given inforamtion about this trial and asked if you wish to participate.  

The Indigo Cancer Survey is a national survey for all people who have been diagnosed with cancer at any time in their adult life.  Patients will be invited to take part in the survey via a text.  If you agree to take part you will be asked about the positive and negative aspects of your cancer diagnosis and treatment and how this may have affected your life. By sharing your experiences, you will be helping to improve the care, treatments and services people receive. 

If you wish to know more about this study, please click here.

Some children with ADHD experience problems with sleep.

A research study called Sleep Buddy is currently looking at whether a new online programme can help improve sleep in children aged 6–12 years who have a diagnosis of ADHD (including ADD).

Sleep Buddy is a website designed by doctors and psychologists. Parents use the website at home to support their child’s sleep. The study is testing how helpful this programme is for families.

Who can take part?

Your child may be able to take part if:

• they are aged 6–12 years
• they have a diagnosis of ADHD
• they experience sleep problems
• you can read and understand English

Taking part

Taking part is completely voluntary. Deciding not to take part will not affect your child’s care or support in any way.

If you would like to find out more, please read the Sleep Buddy leaflet or contact the research team directly using the details provided on the link below.

SleepBuddy Research Information Leaflet

The MAMA Study is exploring whether women with inflammatory arthritis should continue or stop biologic medicines during pregnancy. If you are pregnant and on a biologic medication and are interested in taking part in this trial, please see the below leaflet.

Mama information leaflet